Table 2 Top-line report of topics that patients might bring to a provider visit (concept elicitation)

• Change in conditions/symptoms

• What’s going well or not well since last visit

• Understanding health/monitoring

• Understanding of diagnoses and treatments

• How am I doing?

• Prioritizing conditions

• Meeting targets/ monitoring numbers

• Difficulty monitoring (breathing/dizzy)

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• Learning about health and asking about new research/treatment for existing conditions

• Health education and information seeking

• Understanding health information

• Role as patient

• Taking care of self

• Support systems (getting and giving)

• Understanding from others (social settings and respecting your needs)

• Caretaking for others

• Social support•

• Social stress or stress reduction

• Living situation

• Roles and responsibilities

• Advocating for own health care

• Genuine interest in patients

• What’s important/patient goals and perspective of “health”

• Life and health goals (including barriers and mismatch)

• Leisure activities

• Traveling and dietary restrictions

• Traveling with family and family support

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• Review of current history

• Repeating medical history

• Preventive care schedule

• History/health conditions

• Medications/new medications

• Side effects/interactions

• Planning/schedules

• Over-the-counter medications

• Adjusting/coordinating medications

• Cost of medications

• Number of medications

• Prior authorizations/paperwork bureaucracy

• Planning unpredictability

• Paying for medications

• Sleep problems

• Diet, exercise and sleep

• Worry/sleep problems

• Diet, exercise and sleep

• Health care since last visit, e.g. surgeries

• Following prescribed care (why/why not)?

• Fear of future

• Angry

• Scared

• Understanding physical, functional, and emotional well-being

• How are you doing?

• Coping w/conditions

• Fear of future

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• Understanding follow-up plans and visits

• Understanding information from providers

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• Housing and transportation