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Table 5 Responsiveness of Brief PETS to changes in health status from baseline to follow-up assessment

From: Deriving and validating a brief measure of treatment burden to assess person-centered healthcare quality in primary care: a multi-method study

Brief PETS change scorea Change in physical health status in past 30 dayse Change in mental health status in past 30 dayse Change in activity limitation status in past 30 dayse
Declining health
N = 113
(Chg. unhealthy days mean: + 7.7)
Improving health
N = 115
(Chg. unhealthy days mean: − 8.3)
Declining health
N = 106
(Chg. unhealthy days mean: + 7.8)
Improving health
N = 90
(Chg. unhealthy days mean: − 8.5)
Declining health
N = 106
(Chg. unhealthy days mean: + 8.9)
Improving health
N = 99
(Chg. unhealthy days mean: − 8.3)
Δ Workload indexb
Mean (SD) 0.9 (14.0) −3.9 (15.0) 0.5 (12.7) −4.1 (15.7) 1.4 (13.8) −6.5 (14.9)
SRM (abs. value) 0.06 0.26 0.04 0.26 0.10 0.44
T (between group) T(224) = 2.44, P < .05 T(192) = 2.24, P < .05 T(201) = 3.94, P < .001
Δ Impact indexc
Mean (SD) 6.7 (24.2) −5.1 (21.0) 8.0 (24.0) −6.1 (20.9) 7.2 (24.1) −7.4 (21.1)
SRM (abs. value) 0.28 0.24 0.33 0.29 0.30 0.35
T (between group) T(224) = 3.92, P < .001 T(192) = 4.34, P < .001 T(200) = 4.57, P < .001
Δ Dietd
Mean (SD) 0.0 (27.7) −2.7 (24.6) 5.4 (21.4) −6.2 (25.5) 1.7 (22.4) −5.0 (25.6)
SRM (abs. value) 0.00 0.11 0.25 0.24 0.08 0.20
T (between group) T(102) = 0.52, NS T(90) = 2.39, P < .05 T(91) = 1.35, NS
Δ Exercise / Phys. Ther.d
Mean (SD) 6.4 (30.8) −3.9 (23.6) 4.6 (24.9) −4.1 (29.3) 8.9 (26.5) −8.8 (25.0)
SRM (abs. value) 0.21 0.17 0.18 0.14 0.34 0.35
T (between group) T(115) = 2.04, P < .05 T(113) = 1.72, NS T(107) = 3.56, P < .001
Δ Medical expenses
Mean (SD) 0.0 (25.8) −5.5 (24.6) −1.34 (25.9) −7.5 (24.4) − 1.4 (28.5) −8.3 (23.4)
SRM (abs. value) 0.00 0.22 0.05 0.31 0.05 0.35
T (between group) T(191) = 1.51, NS T(166) = 1.56, NS T(176) = 1.75, NS
Δ Diff. healthcare services
Mean (SD) 4.4 (28.9) −2.2 (25.7) 3.2 (25.4) −6.3 (25.4) 5.0 (27.5) −5.6 (26.3)
SRM (abs. value) 0.15 0.09 0.13 0.25 0.18 0.21
T (between group) T(132) = 1.38, NS T(124) = 2.07, P < .05 T(127) = 2.24, P < .05
Δ Med. side-effect bother
Mean (SD) 5.5 (25.5) 2.6 (33.0) 4.5 (28.5) 7.1 (29.8) 0.2 (31.0) 4.5 (31.0)
SRM (abs. value) 0.22 0.08 0.16 0.24 0.01 0.15
T (between group) T(221) = 0.73, NS T(191) = 0.61, NS T(200) = 0.99, NS
  1. aFollow-up – baseline PETS score: positive PETS change score indicates an increase in burden over time; negative PETS change score indicates a decrease in burden over time. bMean of medical information, medications, medical appointments, and monitoring health scales. cMean of role/social activity limitations and physical/mental exhaustion scales. dYes/no screener used for the diet and exercise / physical therapy domains. eFrom the Centers for Disease Control and Prevention Healthy Days measure. “Declining health” indicates an increase in the number of unhealthy days reported from the baseline to the follow-up assessment. “Improving health” indicates a decrease in the number of unhealthy days reported from the baseline to the follow-up assessment. Sample sizes may fluctuate per analysis due to missing data on PETS scales. SRM: standardized response mean (absolute value)