Outcome | Instrument | Source | Time (months) | ||||||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|---|
Questionnaire | Interview | Mother | Father | Diseased child | Sibling | Therapist | External rater | pre | 6 | 12 | 18 | ||
Demographics | Ad-hoc Items | X | X | X | |||||||||
Quality of Life | Parents | EQ-5D | X | X | X | X | X | X | |||||
ULQIE | X | X | X | X | X | X | |||||||
SF-12 | X | X | X | X | X | X | |||||||
Diseased Child | DCGM-37 | X | X | X | X | X | X | X | |||||
Sibling | Kidscreen-27 | X | X | X | X | X | X | X | X | ||||
Diagnoses/Psychiatric symptomatology | Parents | SCID-I | X | X | X | X | X | X | X | ||||
PHQ-D | X | X | X | X | X | X | |||||||
BSI | X | X | X | X | X | X | |||||||
GAF | X | X | X | X | X | ||||||||
Children | K-SADS-PL | X | X | X | X | X | |||||||
CGAS | X | X | X | X | X | ||||||||
CBCL 1½–5 / CBCL 6-18R / YSR | X | X | X | X | X | X | X | X | |||||
Coping | Parents | CHIP-D | X | X | X | X | X | X | |||||
Children | KidCOPE | X | X | X | X | X | X | ||||||
Social network | Social support | OSSS | X | X | X | X | X | X | X | X | |||
Family relations | GARF | X | X | X | X | X | |||||||
Sibling relationship | SRQ | X | X | X | X | X | |||||||
Partnership satisfaction | Parent relationship | PFB | X | X | X | X | X | X | |||||
Body-related disorders (Diseased child) | Eating Behavior | EDY-Q | X | X | X | X | X | X | X | ||||
Body related eating behavior | ChEDE-Q8 | X | X | X | X | X | |||||||
Excretion Disorders | Questionnaire on Enuresis and Functional Urinary Incontinence | X | X | X | X | X | X | ||||||
Health economics | Intervention costs children | CAMHSRI-DE | X | X | X | X | X | X | X | ||||
Intervention costs parents | CSSRI-DE | X | X | X | X | X | X | X | |||||
Diagnostics of care and quality of care | Previous experience and treatment expectations | Ad-hoc Items | X | X | X | X | X | X | X | X | |||
Treatment goals | Ad-hoc Items | X | X | X | X | X | X | X | X | X | |||
Satisfaction- and treatment assessmenta | FBB | X | X | X | X | X | X | X | X | ||||
ZUF-8 | X | X | X | X | X | X | X | ||||||
VPPSa | X | ||||||||||||
Ad-hoc Items | X | X | X | X | X | X | X | X |