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Table 1 Questions guiding patients to describe their experiences of the diagnostic pathway of Parkinson’s disease

From: The diagnostic pathway of Parkinson’s disease: a cross-sectional survey study of factors influencing patient dissatisfaction

Question

 

1.

Can you describe the first symptom(s) that eventually turned out to be a forerunner sign of PD? What did you do when you experienced this symptom or these symptoms?

2.

Can you describe what happened next, until the moment you were diagnosed with PD?

3.

What role was there for people in your surroundings during the diagnostic pathway?

4.

Looking back on the diagnostic pathway, how do you feel about the timing of the diagnosis? Can you describe the consequences of this timing for you and your family?