From: The supportive care needs of parents with a child with a rare disease: results of an online survey
Parent characteristics | n | % |
---|---|---|
Gender | ||
 Mother | 275 | 91.4 |
 Father | 26 | 8.6 |
Total | 301 | 100.0 |
Number of children with a rare disease | ||
 1 | 259 | 86.0 |
 2 | 36 | 12.0 |
 3 or more | 6 | 2.0 |
Total | 301 | 100.0 |
Parent status of disease | ||
 Diagnosed as a carrier/ full disease | 85 | 28.2 |
 Suspected carrier/ full disease | 21 | 7.0 |
 No carrier/disease | 195 | 64.8 |
Total | 301 | 100.0 |
Age | ||
 15–24 | 8 | 2.7 |
 25–34 | 84 | 27.9 |
 35–44 | 131 | 43.5 |
 45–54 | 66 | 21.9 |
 55+ | 12 | 4.0 |
Total | 301 | 100.0 |
Country and region of residence | ||
Australia (total) | 285 | 100.0 |
 Metropolitan/ City | 190 | 66.7 |
 Rural/ Country area | 95 | 33.3 |
New Zealand (total) | 16 | 100.0 |
 Metropolitan/ City | 10 | 62.5 |
 Rural/ Country area | 6 | 37.5 |
Total | 301 | 100.0 |
Marital status | ||
 Single/ Never married | 5 | 1.7 |
 Married/ Defacto | 258 | 85.7 |
 Widowed | 7 | 2.3 |
 Separated/ Divorced | 31 | 10.3 |
Total | 301 | 100.0 |
Respondent’s employment status | ||
Of parent | Â | Â |
 Full-time wage earner | 52 | 18.5 |
 Part-time wage earner | 101 | 36.1 |
 Non-wage earner | 127 | 45.4 |
Total | 274 | 100.0 |
Partner’s employment status | ||
 Full-time wage earner | 184 | 79.6 |
 Part-time wage earner | 24 | 10.4 |
 Non-wage earner | 23 | 10.0 |
Total | 231 | 100.0 |