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Understanding the healthcare system
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(General comment) It is important for caregivers to understand what services and supports are available for the caregiver and care recipient
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I know what healthcare services are available to help the person I care for
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Adequate information about cancer and cancer management
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Suggest including additional items about managing side effects, and caregivers’ having enough information to support the care recipient
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I know which side-effects require immediate medical attention
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I know the routine things the person I care for needs to do to look after their own health
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I know what healthcare services are available to help me
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Processing health information
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Suggest including additional questions that explore caregiver’s capacity to identify relevant information
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[How easy or difficult is it for you to…] Work out which sources have information that is relevant for the person I care for
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Supported by healthcare providers to understand information
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(General comment) It is important for caregivers to understand what services and supports are available for the caregiver and care recipient
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Healthcare providers have helped me understand services available for the person I care for
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Healthcare providers have helped me understand services available to support me
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Active engagement with healthcare providers
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(General comment) It is important for caregivers to understand what services and supports are available for the caregiver and care recipient
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Ask a healthcare provider to explain what healthcare services are available to help me provide care
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Self-care
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Suggest including a question about physical activity or exercise
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Despite other things in my life, I make sure I regularly exercise
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