|
Supported by healthcare providers to understand information
|
50
|
Healthcare providers have helped us compare information about treatments
|
Healthcare providers have helped me compare information about treatments
|
Consider using ‘me’ rather than ‘us’ to avoid confusion
|
| |
57
|
Healthcare providers have helped me understand the potential side effects of treatments
|
Healthcare providers have helped us understand the potential side effects of treatments
|
Consider using ‘me’ rather than ‘us’ to avoid confusion
|
|
Communication with the care recipient
|
58
|
After appointments, I discuss the information given by doctors with the person I care for
|
After appointments, I discuss the information given by healthcare providers with the person I care for
|
Referring to doctors or all healthcare providers
|
|
Understanding the care recipient
|
14
|
I understand when to let the person I am caring for do things by themselves in their own time
|
I understand when to let the person I am caring for do things for themselves in their own time
|
Perhaps “for themselves” better captures the concept
|
| |
30
|
I know which everyday activities the person I care for would like to be involved in
|
I know which everyday activities the person I care for would like to do
|
Changing “involved in” might improve clarity
|
| | |
I know which everyday activities the person I care for can participate in
|
I know which everyday activities the person I care for can do
|
Changing “participate in’ to “can do” might improve clarity
|
|
Social support
|
4
|
There is at least one person who understands and supports me
|
I have at least one person who understands and supports me
|
Consider changing the stem to follow other items
|
| |
12
|
I have strong support from at least one family member
|
I have strong support from at least one family member or friend
|
Is it necessary to differentiate between family member and friend
|
| |
66
|
I have strong support from at least one friend
|
Not applicable: Subsumed into above item
|
As above
|
| |
20
|
I get plenty of chances to talk to other people who are caring for someone with cancer
|
I get enough chances to talk to other people who are caring for someone with cancer
|
Might not need ‘plenty’
|
| |
44
|
I have family or friends who can attend medical appointments with us
|
I have at least one family member or friend who can attend medical appointments with us
|
Identifying one person would be adequate
|
