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Table 4 Psychological and physical symptoms in the last week of life of Belgian patients dying at home* non-suddenly: MSAS-GDI (N = 205)

From: Dying at home in Belgium: a descriptive GP interview study

 

N (%)†

Rarely

Occasionally

Frequently

Almost constantly

N (%) §||

N (%) §¶

Psychological symptoms

Presence

How frequently did the patient experience the symptom? N (%)?‡

Physical or psychological symptom most difficult to manage

Most distressing physical or psychological symptom

Feeling sad

104 (51)

6 (6)

26 (25)

36 (35)

35 (34)

14 (9)

10 (6)

Worrying

95 (46)

4 (4)

25 (26)

35 (37)

30 (32)

5 (3)

8 (5)

Feeling irritable

62 (30)

7 (11)

25 (40)

20 (32)

9 (15)

4 (3)

2 (1)

Feeling nervous

88 (43)

8 (9)

38 (43)

28 (32)

14 (16)

5 (3)

4 (2)

Physical symptoms

Presence

How much did the symptom distress/bother the patient? N (%)?‡

  
 

N (%) †

Not at all/A little

Somewhat

Quite a bit

Very much

  

Lack of appetite

177 (86)

75 (42)

26 (15)

43 (24)

31 (18)

19 (12)

8 (5)

Lack of energy

187 (91)

36 (19)

30 (16)

50 (27)

67 (36)

30 (19)

47 (27)

Pain

114 (56)

37 (32)

38 (33)

24 (21)

13 (11)

18 (12)

28 (16)

Feeling drowsy

147 (72)

66 (45)

36 (24)

33 (22)

7 (5)

6 (4)

4 (2)

Constipation

78 (38)

34 (44)

28 (36)

11 (14)

4 (5)

6 (4)

6 (3)

Dry mouth

97 (47)

31 (32)

29 (30)

28 (29)

7 (7)

6 (4)

10 (6)

Shortness of breath

111 (54)

25 (23)

25 (23)

25 (23)

35 (31)

42 (27)

46 (27)

Mean N° of symptoms per patient (SD)

6.15 ± 2.49

Global Distress Index (Mean, SD)**

1.57 ± 0.68

  1. * Patients dying at their own home or at the home of a relative; all percentages are column percentages except these about frequency of experience and distress of the symptoms which are row percentages (% of those patients whose GP answered yes to a symptom)
  2. † missing values: for Feeling sad n = 24, for Worrying n = 24, for Feeling irritable n = 17, for Feeling nervous n = 16, for Lack of appetite n = 14, for Lack of energy n = 13, for Pain n = 12, for Feeling drowsy n = 14, for Constipation n = 34, for Dry mouth n = 28, for Shortness of breath, n = 11
  3. ‡ missing values: for Feeling sad n = 1, for Worrying n = 1, for Feeling irritable n = 1, for Lack of appetite n = 2, for Lack of energy n = 4, for Pain n = 2, for Feeling drowsy n = 5, for Constipation n = 1, for Dry mouth n = 2, for Shortness of breath n = 1
  4. § missing values: for Symptom most difficult to manage n = 32, for Most bothersome symptom n = 13
  5. || category 'other' n = 14, category 'none' n = 4
  6. ¶ category 'other' n = 14, category 'none' n = 5
  7. ** 18 cases excluded from analyses: for 18 cases the GP could not score > 3 symptoms